{"id":38150,"date":"2022-04-27T11:20:12","date_gmt":"2022-04-27T09:20:12","guid":{"rendered":"https:\/\/erdmost.hu\/?p=38150"},"modified":"2022-04-27T11:20:12","modified_gmt":"2022-04-27T09:20:12","slug":"galo-tomikanak-mar-csak-a-vilag-legdragabb-gyogyszere-segithet","status":"publish","type":"post","link":"https:\/\/erdmost.hu\/en\/2022\/04\/27\/galo-tomikanak-mar-csak-a-vilag-legdragabb-gyogyszere-segithet\/","title":{"rendered":"Gal\u00f3 Tomik\u00e1nak m\u00e1r csak a vil\u00e1g legdr\u00e1g\u00e1bb gy\u00f3gyszere seg\u00edthet"},"content":{"rendered":"

Van azonban lehet\u0151s\u00e9g a gy\u00f3gyszer beszerz\u00e9s\u00e9re, ami viszont nagyon dr\u00e1ga. Seg\u00edts\u00fcnk!<\/span><\/span><\/span><\/span><\/span><\/p>\n

Az els\u0151 hasonl\u00f3 megmozdul\u00e1s a kis Zent<\/span><\/span>\u00e9\u00e9<\/span><\/span><\/span>rt szervez\u0151d<\/span><\/span>\u00f6<\/span><\/span><\/span>tt, az SMA (gerinc eredet\u0171 izomsorvad\u00e1s) betegs<\/span><\/span>\u00e9<\/span><\/span><\/span>g az \u0151 t<\/span><\/span>\u00f6<\/span><\/span><\/span>rt<\/span><\/span>\u00e9<\/span><\/span><\/span>net\u00e9vel ker\u00fclt a figyelem k\u00f6z\u00e9ppontj\u00e1ba. <\/span><\/span><\/p>\n

Gal\u00f3 Tomika ugyanebben az SMA betegs\u00e9gben szenved, de \u0151 m\u00e1r idehaza nem kaphatja meg a gy\u00f3gyszert tb-t\u00e1mogat\u00e1ssal, mert bet\u00f6lt\u00f6tte a harmadik \u00e9v\u00e9t. Van azonban lehet\u0151s\u00e9g a gy\u00f3gyszer beszerz\u00e9s\u00e9re, ami viszont nagyon dr\u00e1ga.<\/span><\/span><\/p>\n

Sokan \u00f6sszefogtak a kisfi\u00fa megment\u00e9s\u00e9\u00e9rt, a rengeteg licit, seg\u00edts<\/span><\/span>\u00e9<\/span><\/span><\/span>g ellen<\/span><\/span>\u00e9<\/span><\/span><\/span>re azonban a gy\u0171jt<\/span><\/span>\u00e9<\/span><\/span><\/span>s lassan halad, az <\/span><\/span>\u00f6<\/span><\/span><\/span>sszeg k<\/span><\/span>\u00f6<\/span><\/span><\/span>zel 30%-a van csup\u00e1n meg. <\/span><\/span><\/p>\n

Minap sz\u00fcletett egy kezdem\u00e9nyez\u00e9s, a v\u00e1rosok kih\u00edv\u00e1sa Tomik\u00e1\u00e9rt, amelyben \u00c9rd is szeretne r\u00e9szt venni. A felh\u00edv\u00e1s \u00edgy sz\u00f3l: <\/span><\/span><\/p>\n

\u201eKedves <\/span><\/span>\u00c9<\/span><\/span><\/span>rd,\u00a0Magyarorsz\u00e1g telep\u00fcl<\/span><\/span>\u00e9<\/span><\/span><\/span>seinek nagy virtu\u00e1lis verseny<\/span><\/span>\u00e9<\/span><\/span><\/span>t hirdetj\u00fck meg, amelynek nyertese az \u00d6n<\/span><\/span>\u00f6<\/span><\/span><\/span>k seg\u00edts<\/span><\/span>\u00e9<\/span><\/span><\/span>g<\/span><\/span>\u00e9<\/span><\/span><\/span>vel egy beteg kisfi\u00fa lehet. <\/span><\/span><\/p>\n

Gal<\/span><\/span>\u00f3 <\/span><\/span><\/span>Tomik\u00e1nak (<\/span><\/span>https:\/\/www.facebook.com\/egyuttTomikaert<\/span><\/span><\/span><\/a><\/u><\/span>) m\u00e1r csak a vil\u00e1<\/span><\/span>g legdr<\/span><\/span><\/span>\u00e1g\u00e1bb gy<\/span><\/span>\u00f3<\/span><\/span><\/span>gyszere seg\u00edthet.\u00a0A k<\/span><\/span>\u00e9<\/span><\/span><\/span>r<\/span><\/span>\u00e9<\/span><\/span><\/span>s\u00fcnket azonban, hogy a gy\u00f3gyszert tb-t\u00e1mogat\u00e1ssal megkaphassa, elutas\u00edtott\u00e1k. Az ok: itthon csak 3 <\/span><\/span>\u00e9<\/span><\/span><\/span>ves korig <\/span><\/span>\u00e9<\/span><\/span><\/span>s 13,5 kg-ig tb-t\u00e1mogatott ez a gy\u00f3gyszer. Ezzel szemben az Eur<\/span><\/span>\u00f3<\/span><\/span><\/span>pai Gy<\/span><\/span>\u00f3<\/span><\/span><\/span>gyszer\u00fcgyi bizotts\u00e1g s\u00falyhat\u00e1ra 21 kg, r\u00e1ad\u00e1sul korhat\u00e1r n<\/span><\/span>\u00e9<\/span><\/span><\/span>lk\u00fcl, amit szerencs<\/span><\/span>\u00e9<\/span><\/span><\/span>re m\u00e1r sz\u00e1mos orsz\u00e1g alkalmaz, amib\u0151l az is kider\u00fcl, hogy a nagyobb gyerekekn\u00e9l is hat\u00e9kony a gy\u00f3gyszer!\u00a0<\/span><\/span><\/p>\n

A verseny l<\/span><\/span>\u00e9<\/span><\/span><\/span>nyege, hogy min<\/span><\/span>\u00e9<\/span><\/span><\/span>l t<\/span><\/span>\u00f6<\/span><\/span><\/span>bb telep\u00fcl<\/span><\/span>\u00e9<\/span><\/span><\/span>sre eljusson Tomika h\u00edre, min<\/span><\/span>\u00e9<\/span><\/span><\/span>l t<\/span><\/span>\u00f6<\/span><\/span><\/span>bb j<\/span><\/span>\u00f3<\/span><\/span><\/span>sz\u00e1nd<\/span><\/span>\u00e9<\/span><\/span><\/span>k\u00fa ember seg\u00edthesse \u0151t!\u00a0<\/span><\/span><\/p>\n

NYEREM<\/span><\/span><\/span>\u00c9<\/span><\/span><\/span>NY<\/span><\/span><\/span>: Az els\u0151 5 telep\u00fcl<\/span><\/span>\u00e9<\/span><\/span><\/span>s, ahonnan a legt<\/span><\/span>\u00f6<\/span><\/span><\/span>bb <\/span><\/span>\u00f6<\/span><\/span><\/span>sszeg <\/span><\/span>\u00e9<\/span><\/span><\/span>rkezik, virtu\u00e1<\/span><\/span>lis oklevel<\/span><\/span><\/span>\u00fcnk b\u00fcszke tulajdonosa lehet!\u00a0<\/span><\/span><\/p>\n

A verseny v<\/span><\/span>\u00e9<\/span><\/span><\/span>ge: 2022.07.01<\/span><\/span><\/span>. <\/span><\/span><\/p>\n

Tisztelettel k<\/span><\/span>\u00e9<\/span><\/span><\/span>rj\u00fck \u00d6n<\/span><\/span>\u00f6<\/span><\/span><\/span>ket, amennyiben b\u00e1rkinek a k<\/span><\/span>\u00f6<\/span><\/span><\/span>z<\/span><\/span>\u00f6<\/span><\/span><\/span>ss<\/span><\/span>\u00e9<\/span><\/span><\/span>gb\u0151l van lehet\u0151s<\/span><\/span>\u00e9<\/span><\/span><\/span>ge t<\/span><\/span><\/span>\u00e1mogatni Tomik\u00e1t, a megadott sz\u00e1mlasz\u00e1mra utaljon b\u00e1rmekkora <\/span><\/span>\u00f6<\/span><\/span><\/span>sszeget, ezzel seg\u00edtve a gy<\/span><\/span>\u00f3<\/span><\/span><\/span>gyul\u00e1<\/span><\/span>s es<\/span><\/span><\/span>\u00e9<\/span><\/span><\/span>ly<\/span><\/span><\/span>\u00e9<\/span><\/span><\/span>t.\u00a0<\/span><\/span><\/p>\n

Gal<\/span><\/span>\u00f3 <\/span><\/span><\/span>Tam\u00e1s Dominik Gy<\/span><\/span>\u00f3<\/span><\/span><\/span>gyul\u00e1s\u00e1\u00e9rt Alap\u00edtv\u00e1ny K&H Bank sz\u00e1mlasz\u00e1m: 10400157-50526884-67691018\u00a0<\/span><\/span><\/p>\n

A k<\/span><\/span>\u00f6<\/span><\/span><\/span>zlem<\/span><\/span>\u00e9<\/span><\/span><\/span>nybe \u00edrj\u00e1k bele: \u201eOrsz\u00e1gos verseny Tomik\u00e1\u00e9rt \u2013 \u00c9RD\u201e <\/span><\/span><\/p>\n

Fontos a k<\/span><\/span>\u00f6<\/span><\/span><\/span>zlem<\/span><\/span>\u00e9<\/span><\/span><\/span>ny az eredm<\/span><\/span>\u00e9<\/span><\/span><\/span>nyhirdet<\/span><\/span>\u00e9<\/span><\/span><\/span>shez\u00a0(<\/span><\/span>paypal.me\/EgyuttGTomikaert<\/span><\/span><\/a><\/u><\/span>)<\/span><\/span><\/p>\n

Ha 300<\/span><\/span><\/span> 000 ember csak 2000 Forinttal t\u00e1mogatn\u00e1 Tomik\u00e1t, a sz\u00fcl\u0151k m\u00e1r rendelhetn<\/span><\/span>\u00e9<\/span><\/span><\/span>k is a gy<\/span><\/span>\u00f3<\/span><\/span><\/span>gyszert. Lesz \u00d6n is egy a h\u00e1romsz\u00e1zezerb\u0151l, aki megmenti \u0151t? <\/span><\/span><\/p>\n

Minden seg\u00edts<\/span><\/span>\u00e9<\/span><\/span><\/span>get h<\/span><\/span><\/span>\u00e1l\u00e1san k<\/span><\/span>\u00f6<\/span><\/span><\/span>sz<\/span><\/span>\u00f6<\/span><\/span><\/span>n\u00fcnk!\u201d<\/span><\/span><\/p>","protected":false},"excerpt":{"rendered":"

Gal\u00f3 Tomika SMA betegs\u00e9gben szenved, de \u0151 m\u00e1r idehaza nem kaphatja meg a gy\u00f3gyszert tb-t\u00e1mogat\u00e1ssal, mert bet\u00f6lt\u00f6tte a harmadik \u00e9v\u00e9t.<\/p>","protected":false},"author":8,"featured_media":38155,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_seopress_robots_primary_cat":"none","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","site-sidebar-layout":"default","site-content-layout":"default","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","ast-disable-related-posts":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"default","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"","background-image":"","background-repeat":"repeat","background-position":"center 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